Bella Chiacchia || FPIES

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FPIES

Bella Chiacchia

    

What is it?


     FPIES is an immune reaction in the gastrointestinal system. It is very rare affecting only 0.28% of people in the United States. It affects people of all ages and you can have it to literally anything. The most common FPIES triggers are rice, oats, barley, chicken, turkey, fish, peas, green beans, and squash. When you have FPIES and ingest your trigger, you become very sick. 
People with FPIES have to check everything they eat, very similar to someone who is allergic to nuts, dairy, eggs, and more. Kids who have FPIES have to typically take their own lunches to school in order to avoid their triggers and get sick. Although, FPIES is not an anaphylactic reaction. If you have eaten your FPIES trigger, you will receive a wide variety of symptoms. You may experience... 

  1. Chronic puking for a long period of time
  2. Lethargy
  3. Blood Pressure Changes
  4. Weight Loss
  5. Body Temperature Fluctuation
  6. More Symptoms
Patients who are having a reaction are typically advised to rush to the hospital when they know they have ingested their trigger, or are having symptoms. This is due to the fact that your body could go into shock and you could possibly die if you are not treated. 

History

The FPIES Association was formed more recently due to the fact that the autoimmune disease was very rarely known. The association was founded by 8 families with kids who have FPIES. Without the foundation being formed, many people wouldn't know what it is. Even less than today. FPIES was first described and discovered in infants in the late 1970s. The disease didn't have its own diagnostic code until 2015. A diagnostic code is the DNA strand that is causing FPIES, and it wasn't discovered until 2015. A full diagnosis of the whole disease was written about in 2017.

Current Events


     Currently, more cases are being diagnosed as the disease becomes more known. It is a rare disease with roughly 0.28% of the United States having it. Students in the medical field are starting to learn about FPIES, which they didn’t teach in schools up until these past three years or so. Many people are starting to figure out what FPIES is because national rare disease day was February 29, and May 4 is National FPIES Day, people are spreading awareness. There is currently no medication or prescription that can stop FPIES because it is autoimmune.












Personal Connections

My sister has FPIES to rice, so I am taught a lot at home about what FPIES is, what to do during a reaction, and what the symptoms are. I would really like to help create more awareness about FPIES because it can help someone struggling with an unknown sickness, that could turn up to be FPIES related. 


Extra Facts

  •  FPIES stands for Food Protein-Induced Enterocolitis Syndrome
  • Most common triggers are milk and soy
  • FPIES starts within the first year of life
  •  Reactions are delayed two hours after ingestion
  • In 20% of cases, people need to be hospitalized because they go into shock
  • It is an autoimmune disease
  • The symptoms are a bluish tone to the skin, fatigue, tons of vomiting, rolled back eyes, and eventually shock if the person has severe FPIES

MLA CITATION

“What Is FPIES?” The FPIES Foundation, 28 Apr. 2020, fpiesfoundation.org/fpies-questions-and-answers-from-the-medical-advisory-board/qa-what-is-fpies/.  

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